Archive for Tag: rare disease

Posted on 20 May 2021

/ Margo Riser

Dancer’s rare disease advisory council measure goes to governor’s desk

TRENTON, N.J. – Residents afflicted with rare diseases can look forward to better coordinated and more effective attention from experts and government leaders under legislation sponsored by Assemblyman Ron Dancer and advanced by the full Assembly today. Dancer’s bill (A4016/S2682) establishes a 20-member advisory council to undertake a comprehensive...

medical treatment, Nadia Bodkin, Rare Advocacy Movement, rare disease, rare disease advisory council, Ron Dancer

Press Release

Assembly panel advances Dancer legislation creating rare disease advisory council

TRENTON, N.J. – People afflicted with rare diseases can look forward to better coordinated and more effective attention from experts and government leaders under legislation sponsored by Assemblyman Ron Dancer and advanced by the Assembly Health Committee on Wednesday. Dancer’s bill (A4016) would establish a 20-member rare disease advisory...

coronavirus, Nadia Bodkin, Rare Advocacy Movement, rare disease, rare disease advisory council, Ron Dancer

Press Release