Archive for Tag: New Jersey Rare Action Network

Advocates rally behind Dancer legislation creating rare disease advisory council

TRENTON, N.J. – Advocates from the National Organization of Rare Disorders and Rare Advocacy Movement are organizing to support legislation sponsored by Assemblyman Ron Dancer. Dancer’s bill (A4016) would establish a 30-member advisory council that would examine the issues facing those diagnosed with a rare disease through a comprehensive...

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